Monday, April 15, 2013

Right to Family Challenged for Persons with Disabilities


The ability to make decisions about marriage and family formation is a fundamental human right, and yet, when it comes to persons with disabilities, we see this principle challenged all the time.  Three recent news articles from the United States, Australia, and Canada highlight the issue that many governments continue to challenge the rights of persons with disabilities to be partners and parents.

Article 23 of the Convention on the Rights of Persons with Disabilities (CRPD) mandates that States Parties implement strong legal protections to prevent discrimination and ensure that persons with disabilities have the right “to marry and to found a family.”  Nevertheless, the three articles discussed here demonstrate how, even in developed countries, governments continue to impinge on the rights of persons with disabilities to form families.  Both Canada and Australia have ratified the CRPD, making the principles in the treaty legally binding.  The United States is only a signatory to the Convention, but, as such, it should aim in good faith not to violate the principles of the treaty.

The first article  from New York State discusses the barrier one American couple is facing, which hinders their right to family.  The engaged couple—Paul Forziano and Hava Samuels—two persons with developmental disabilities, currently live in separate group homes that allow them to receive some support while living within the community.  The couple hopes to move in together after they are married, but so far, both homes have refused to allow them to live together.  As a result, Forziano and Samuels are filing a suit in the state of New York with the goal of protecting their right to live as a couple in the environment of their choice.  If the suit is successful, this case could be an important step forward in recognizing the rights of couples with disabilities in the United States.

The second article from Australia demonstrates how forced sterilisation continues to deny women with disabilities the rights to bodily integrity and family.  While the parents of the little girl featured in the article refused to allow their daughter to be sterilsed due to her disability, many other women and girls around the world are subject to this practice without their consent.  Forced sterilisation of persons with disabilities is currently under Senate inquiry in Australia and, alarmingly, one poll showed that two-thirds of Australians would support the sterilisation of persons with disabilities.  Forced sterilisation of women with disabilities represents a clear violation of a host of human rights, including, the right to family, non-discrimination, self-determination, physical and mental integrity, among other human rights.  

In a third article, parents with Cerebral Palsy in Canada were only able to maintain custody of their child after winning a lengthy legal battle against the State.  To keep their baby boy, the parents had to prove that they could successfully and safely care for their child.  Although there are instances when persons with disabilities, like all other segments of society, are not able to care for a child, taking children away from parents with disabilities should never be an automatic response.  For many people, having a family brings incredible happiness and fulfillment. Denying a person the right to a family based on disability amounts to state-sponsored discrimination and violates human rights principles.  

There are a number of issues with the way States handle the right to family for persons with disabilities.  One problem is that persons with disabilities are often treated like children, incapable of taking care of themselves or others.  Often countries deny persons with disabilities the right to family based on the assumption that persons with disabilities will not be able to provide for the child’s ‘welfare’ or ‘best interest.’  Many people falsely assume that the disability will automatically be passed on to children of persons with disabilities; even if this were true, all people have the human right to found a family if they so choose.  To better address these issues, governments must look at each case individually, while respecting the human rights of persons with disabilities. Lastly, and perhaps most importantly, all children deserve a loving home, and disability does not limit a person’s capacity to love.

To learn more about the Right to Privacy, Integrity, Home, and the Family see Chapter 7 of Human Rights. YES! Action and Advocacy on the Rights of Persons with Disabilities: http://www1.umn.edu/humanrts/edumat/hreduseries/HR-YES/chap-7.html.